Two days ago I blogged about the first half of the initial meeting with my oncologist. Most of the first half of that meeting was about getting to know the oncologist and deciding whether my wife and I trusted this doctor to care for my cancer. Now I will focus on the second half of the meeting. Everything changed at that point due to the results of my PET scan.
The events of this post happened on Wednesday, September 5 (about two weeks ago as I write this). Earlier that afternoon I had a PET scan done. After the PET scan I met with my the doctor who would become my oncologist. About half way through the meeting with the oncologist my PET scan results were released. That was when the fireworks started.
As my doctor opened the PET scan results she explained we would be looking at “slices” of my body starting from neck and going all the way down to my thighs. She went on to explain there would be a glowing in the places where cancer was present. Almost immediately we were able to see about a handful of large glowing areas in my neck. I already knew there were lymph nodes with cancer in my neck because one of them was causing my windpipe to be restricted. What I didn’t expect to see was glowing everywhere as the doctor went along my body. I can’t actually remember much of that first scan, just feeling of being overwhelmed at seeing so many glowing spots. I also vaguely remember seeing my spleen and one of my lungs were infected with cancer. In my mind this looked like the finale at a large fireworks display. It appeared fireworks were going off everywhere!
I know the doctor took me through the whole scan an explained everything as we went. But I really don’t remember any of that. All I remember is her saying is that since my bones were infected that I would not need a bone marrow biopsy. She also talked about my symptoms and the fact that I would need to start chemo immediately. My lymphoma had spread to a point where a watch and wait approach would not longer be appropriate. Vaguely I also recall her saying there was some good news in what she saw so we would only have to do a chemo approach. I can’t remember exactly what that was she said though (in two weeks I met her again and know what she said now, but I will cover that in a future post).
After speaking with the doctor, my wife and I both agreed that we would proceed with chemo as soon as possible. The doctor put in an order to have a port placed in my chest to make chemo easier. This was on a Wednesday and she hoped the surgeon would be able to get the port in on Friday. She also hoped for me to start chemo the next Monday, although that was dependent upon me getting a port in before that time and upon the insurance company pre-approving chemo by that time.
Looking back I don’t remember feeling any particular emotion. I think I was just overwhelmed with finding out the cancer had spread throughout what appeared to be my whole body. There was probably a lot more said by the doctor during that meeting which I am simply forgetting. Luckily I had a meeting two weeks later with the doctor as she patiently went over everything with me again (again, that will be in a later post). Now that I think about it, I don’t even remember going home that day or if I finally got to each lunch after fasting for the PET scan. All I could see is the “fireworks” going off throughout my body.
This is where I’ll leave off for today. Even though I don’t remember much about the second half the initial meeting with oncologist, I will definitely never forget the fireworks discovered during said meeting. In the next post I will continue my story as I meet the surgeon and get a port placed in my chest.