Last week I noted I would be going in for my after-chemo PET scan. I wasn’t really worried about this particular scan. The mid-chemo scan showed a lot of progress and I expected to get an all-clear during this scan. It never even occurred to me I would still have something show up in the scan. Well something did and I go in for a bone marrow biopsy tomorrow to find out the details.
On Wednesday of last week I had the PET scan. Just like the previous two PET scans, this one went fine. This one seemed to take longer than the previous two. But then I’m 6’3″, so my PET scan takes longer than people of more average height. When leaving the hospital I put the PET scan out of mind since I was unlikely to see any results from the scan until the next week.
On Thursday morning my oncologist called me right away. She let me know that she had reviewed the scan already and that there was still one area lit up on the PET scan. It was in my pelvis and she wanted to do a bone marrow biopsy in order to determine more about the spot. I agreed this was the right thing to do. She then had her nursing staff cancel my doctors appointment for the following Wednesday and instead setup a surgery appointment. As I write this, the bone marrow biopsy surgery will occur tomorrow.
I wanted to blog about this right away. But each time I sat to blog about this situation I was unsure of how I felt. Part of me was happy that most of my body is clear of active cancer. But after six rounds of R-CHOP chemo I was feeling somewhat disheartened to hear I was not in total remission. The final two rounds of chemo were particularly hard on me. Hearing that I still had active cancer after going through chemo really made me question whether I can actually fight this cancer off. I haven’t given up, but I definitely had a few days of being down.
On Monday (yesterday) my online chart showed the notes from the doctor that reviewed my PET scan. I can’t see the actual scan images until I visit the doctors office, but the notes can at least let me possibly know a little about what is going on. Here is one of the notes from the scan:
2. There is a new hypermetabolic focus in the left iliac bone compared to prior study. This is commonly seen if the patient has had a bone marrow. However, if the patient has not had a bone marrow aspiration in this area further evaluation would be needed.
With the help of google I was able to determine the “iliac” is the top wing of the pelvis. Further on in the notes it also states the previous PET scan showed no activity in this region.
Seeing the doctors notes probably didn’t give me any truly helpful information to process what is going on with my pelvis. But I still am glad I was able to read the notes. Here is the first note listed:
1. No evidence of metabolically active disease noted. The study is similar to prior PET/CT 11/7/2018 consistent with level 2 disease on the 5 point system.
If it hadn’t been for this new spot in my pelvis I think I could have said I was in remission.
Tomorrow I will go in for the bone marrow biopsy. Hopefully this is much to do about nothing. But if this is something, meaning cancer, I guess I’ll just keep moving forward and work with my oncologist to figure out the next treatment plan (as long as it isn’t R-CHOP).