Multimedia Friday: the PET scan

Earlier this week I mentioned being able to see my second PET scan result. This is a scan that not many people know a lot about, including myself before I first had to get a PET scan. So for this weeks multimedia Friday post I thought it would be worthwhile to share a couple of videos about the PET scan.

Up first is a video explaining the basics of how a PET scan works. This video is just over five minutes long.

Up next is a video of someone showing their PET scan results. I like this video because it shows the “slices” of the body in the same way my oncologist shows me the scan results.  The video also includes white spots similar to the cancer in my scans taken. This video is just under 8 minutes long, but only about the first four minutes are looking at the PET images. The author of this video does not allow it to be streamed from other websites. But if you hit play on the video you can simply click on “watch this video on YouTube”.

Finally I want to share this video explaining the difference between MRI scans, PET scans, and CAT scans. I found it to be interesting. The video is five minutes long.

Bonus Music Video

Up first is kind of a silly song from comedian Dana Carvey. But I couldn’t get this song out of my head earlier this week when writing about R-CHOP, the chemo regiment I am on. Even now in the back of my head I’m singing the lyrics “Ima chopping broccoli!”

For the metal fans we have System of A Down with their song Chop Suey. Not only does this song include the word chop, but in many ways it probably is relevant for too many cancer patients.

The second PET scan looked good!

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Kicking the cancer into remission means being able to spend more time with my boys and I am better able to take care of Ashton on the days he cannot walk!

Last Wednesday I had my second PET scan done to see how well my first three rounds chemo has been working at pushing the lymphoma back. Friday of last week I posted about the scanxiety of waiting for those results. Luckily over the weekend the notes about the scan had been released and it appeared to be good news. Yesterday during my scheduled round of chemo I had an appointment with my oncologist so I could actually see the scan images and get her take on the scan notes. Overall I will say it is great news!

 

The original PET scan reminded me of a fireworks display show. This scan looked nothing like that. Previously I had what appeared to be dozens of lymph nodes from neck to groin lit up with cancerous activity. This time there were no lymph nodes showing any activity. In the first scan my spleen was very over-sized and most of was showing cancerous activity. This time my spleen was almost down to a normal size and showed no cancerous activity. One of my lungs showed quite a bit of cancerous activity. With this scan there was no presence of cancerous activity. I was ecstatic to see this dramatic change.

The cancerous activity was not all gone. My bones still show activity in them. But that cancerous activity is greatly diminished from what it was. The oncologist says it is normal for the bones to take longer. She did say she is happy with the progress made on the bones, even if it is not as far along to being in remission as the rest of the cancer is. I guess bones take a lot longer to heal.

In the notes from the imagine expert it was noted that I have sinusitis. I was given a Z-Pack prescription to take care of this. Despite my best efforts to keep germs and bacteria away, I must have picked up a cold from somewhere. Luckily it isn’t anything too serious. I actually already figured I had something going on with my sinuses for the last week or two due to a stuffed/runny nose and coughing. But part of me thought it was just a side-effect from a chemo drug or fall allergies. Actually I wonder if fall allergies lowered my immune system even lower so I was able to catch some sort of cold.

I just finished my fourth round of chemo today. After six rounds I will have another PET scan done to see if I can stop there or have to go the full eight rounds. I am really hoping I only have to do six rounds. This chemo stuff is very hard on the body and mind. If things go right my final round of chemo will fall on the day after Christmas. That should make for a happy holiday season.

PS. You may have noticed I said I spoke with my Oncologist on the day I was scheduled to have chemo. My chemo was postponed a day due to the hood used by the pharmacist while mixing chemo was broke down on Tuesday for a time. It was repaired and I did chemo today (Wednesday) with no problems. I don’t blame the pharmacist for not wanting to mix chemo chemicals without proper ventilation, this stuff is very toxic!

PET Scan results posted and they look good

Doctor thinks the computerLast Friday I posted about my scanxiety related to waiting for my PET scan results. Originally I thought the wait to see the results would last until Tuesday (tomorrow) when I see my oncologist prior to chemotherapy. Luckily though I was able to see the results of my scan this weekend as they were released to my chart. After reading the results I can say that I am very happy with my response to chemo.

Here is part of what was posted in the lab results part of my online chart:

IMPRESSION:
1. Compared to prior PET/CT 9/5/2018 widespread nodal involvement above and below the diaphragm, splenic and widespread skeletal involvement in the axial and proximal appendicular skeleton have regressed in size and metabolic activity is now normal. This is consistent with a complete metabolic response to therapy. Previously the patient had level 5 disease on the 5 point system and this is returned to level 2 disease of the 5 point system

I put a few sections above in bold lettering. If I am reading this correctly it means I have been responding very well to chemo. It was such a relief to read this. The thought of not responding to chemo and having to start over with a new chemotherapy regiment with a whole different possible set of side-effects was stressing me out. Actually part of me hopes this means I won’t have to do all eight rounds of chemo. Currently I am scheduled to have six to eight rounds of chemo. I’m hoping my response to chemo means I will be able to stop at six rounds. But that will be up to the doctor to determine. Either way I’m happy with what I read.

There are still some trouble areas in my report. But the main area of concern was noted by the imaging doctor as “likely benign”. Also I seem to have developed sinusitis since my last PET scan. I’ll talk to my oncologist about these results tomorrow and see if there is anything that has to be done. Right now I really can’t say I’m worried about them at all.

I am also looking forward to actually seeing my whole scan tomorrow. The online chart does not give me access to see the scan, only the results of the doctor that reviewed the scan. The first scan reminded me of a large fireworks display, hopefully this time it looks more like kiddie fireworks. Plus I know it will relieve a lot of stress from my wife if she is able to see the cancer receding.

Tomorrow I have round four of chemo. I’ll probably do a post prior to my doctor appointment and receiving chemo because I am usually to tired to do any post afterwards (that shot of Benadryl really puts you under). That means it will likely be Wednesday or Thursday before I post about seeing my actual PET scan. Hopefully it looks as good as I think it will!

Waiting for the results of the second PET scan

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The PET scan machine I was in looks similar to this, but has a much longer tube the body goes into.

On Wednesday of this week I had my second PET scan done. I didn’t blog about it at the time because I was feeling somewhat under the weather due to fall allergies. In this post I will share how this experience went and some of the scanxiety this has caused me.

My first PET scan was done about two months ago. At the time I just got my biopsy result and found out for sure I had cancer. Leading up to that first PET scan I had a lot of anxiety, also known as scanxiety. This time I don’t recall having any scanxiety prior to the PET scan, but now that I have to wait for the results I definitely am being impacted by scanxiety.

Before going into the scanxiety let me back up and share my PET scan experience this time. Two days leading up to the PET scan I was on a high protein diet. About 45 minutes prior to the scan I was injected with a glucose solution that contains radioactive material. It is because of this radioactive material that most people will not want to have a PET scan done unless absolutely necessary. Interesting side-note. The tech said the actual injection solution was made down south (I believe in Omaha) and is shipped to Sioux Falls. In Sioux Falls the solution is put into the doses needed for that day and couriered to where it is needed, in this case three hours away in Aberdeen. I believe he said the half-life of the radiation in the solution is 110 minutes. This solution travels quite a bit just to be used in these PET scans. Oops, time to get back on track and focus on the PET scan.

I was on the PET scan bed for just over a half-hour, but the scan itself only lasted for about 25 minutes. My scan went from about half-way down the head to my thighs. Since I am so tall (6’3″) my scan takes longer than people of a normal height. I actually kind of enjoyed the scan for the first half. The bed/table shape feels good on the back and a wedge is used to allow the knees to be bent. About halfway through the scan though my left knee locked up and was in pain for the rest of the day. This might be due to an old injury, or maybe due other factors. It is hard to say.

After the scan my wife and I went out to eat. My scan was in the afternoon and I had been fasting all day for the scan and I was hungry as heck. By the way, mid-afternoon is a great time to go out to eat if you are a chemo patient. We basically had the restaurant (Ruby Tuesdays) to ourselves. I didn’t wear a mask and it felt good to be going out.

The last time I had a scan we saw the results shortly afterwards during an appointment with the oncologist. That was when I first saw the fireworks. Now this time I have to wait almost a week for the results. My next scheduled appointment with the oncologist is next Tuesday during my fourth round of chemo. I didn’t think waiting for the results would impact me, but the waiting is definitely causing me some anxiety. This PET scan will show if the first three rounds of chemo are actually working. If the chemo isn’t working I’ll likely have to switch to another blend of chemo drugs. Chemo drugs are nasty and can have some horrendous side-effects. I know and can deal with the side-effects of my current chemo regiment, known as R-CHOP. The thought of chancing worse side-effects is actually causing me quite a bit of anxiety.

It of course didn’t help that both my wife and I saw a preview of the scan. From our untrained eyes the scan does not look any better than it did two months ago. Actually it appears there may be a new bright spot. Wondering if my cancer has spread or has changed from a grade 2 lymphoma into a grade 3 lymphoma is definitely causing me some stress.

Between now and Tuesday I am trying to keep my mind occupied in the hopes to keep my scanxiety down. So far it isn’t working very well and my anxiety seems to increase each day. Hopefully on Tuesday the Oncologist will let us know the chemo is working as planned and I can continue my R-CHOP regiment to push this lymphoma cancer into remission.

Stages and Grades of lymphoma

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Maybe not the kind of stage I’m talking about in this post.

When people ask what type of lymphoma I have the answer I usually give is grade 2 follicular lymphoma. This is what the diagnosis on my chart says. My wife will usually say I have stage 4 follicular lymphoma. Both answers are technically correct. In this post I will explain the difference between grades and stages.

 

Lymphoma Staging

Lymphoma action has a good page explaining staging and includes pictures. Here are the four stages of lymphoma.

  1. Stage 1 – In stage 1 only one group of lymph nodes has lymphoma. Stage 1 can also mean the lymphoma has started in a body organ, but hasn’t spread anywhere else; that would be known as Stage 1E, or extranodal lymphoma.
  2. Stage 2 – In stage 2 there are two or more lymph node groups with lymphoma. These groups must be all above or all below the diaphragm to be considered stage 2. Stage 2 also has a form of extranodal lymphoma. It would be called Stage 2E and the lymphoma would be in one organ and at least one group of lymph nodes on the same side of the diaphragm.
  3. Stage 3 – In stage 3 there are lymph nodes both above and below the diaphragm with lymphoma.
  4. Stage 3 – In stage 4 the lymphoma has spread to at least one organ, such as the lungs or bone marrow.

After the stage there can also be an A or B. If the person with lymphoma has certain symptoms they are considered to have “B” symptoms. These symptoms can include unexpected weight loss, night sweats, and fevers. The existence of B systems in any stage of lymphoma may impact when treatment starts.

Non-Hodgkin Lymphoma Grades

There are three grades of lymphoma. Basically the lymphoma grade shows how fast the cancer cells are growing and how likely they are to spread. Grades 1 and 2 are considered low-grade or indolent. Grade 3 is considered high-grade, or aggressive. Grade 3 can also be split into 3A and 3B. 3B is usually treated different because it is very fast growing.

My Non-Hodgkin Lymphoma Stage and Grade

My lymphoma is staged at 4B. As I saw when looking at my PET scan, I have lymph node groups from neck to groin infested with lymphoma; which means I am at least stage 3 because lymph node groups above and below my diaphragm are infected with lymphoma. My bone marrow and one of my lungs are also infected with lymphoma; which means I am stage four because of the lymphoma being spread to other organs.

I have the B on my stage because I was suffering from “B symptoms” when being diagnosed. I definitely lost more than 10% of my weight in half a year and I was experiencing night sweats. Another possible B symptom I was experiencing was itching all over my body at night for no reason.

As I noted before, my actual diagnosis is grade 2 follicular lymphoma. This was determined by my biopsy result. A  microscope was used to count the cancer cells and the lab determined I had grade 2 follicular lymphoma. The biopsy was also used to determine I have follicular lymphoma, which is a type of Non-Hodgkin Lymphoma.

The key thing to remember about staging is that it explains how far the lymphoma has spread. For grading the key thing to remember is that it explains how fast the lymphoma has spread. The fact I have low-grade lymphoma is probably the reason my stage is at 4B. I have likely had lymphoma for a very long time, but since it was slow-growing and I was not experiencing any B symptoms I had no idea there was something wrong.

Why I chose not to get a second opinion yet

22117502When talking to people I am often asked why I didn’t get a second opinion about by cancer treatment. Many cancer patients in the area go to the Mayo Clinic in Rochester and believe I should have done so as well. In this post I will explore why I chose not to get a second opinion at Mayo, at least not yet.

Time is the main reason I chose not to get a second opinion. Early on in this blog I shared some of the breathing problems I had leading up to my diagnosis. At the time it appeared I might have some sort of lung disorder. When a large lymph node appeared on my neck it allowed my diagnosis to change towards a type of cancer. When I was able to view the results of a CT scan it was quite clear that a lymph node was obstructing my windpipe. Each day my breathing got worse. By the time I had a surgery to install a chemo port I was happy to be put under just so I could get relief from my breathing problems. My oncologist believed that chemo would reduce the size of the lymph nodes and allow me to breathe once again. I am happy to say she was correct. Had I waited any longer to receive chemo treatment I am not sure I could have physically or emotionally endured those breathing problems any longer. Even delaying treatment for a few days to get a second opinion may have been too much for me to endure at that time.

Another reason I chose not to get a second opinion is that I decided I liked the local oncologist. Prior to seeing the PET scan my wife and I spent some time getting to know the oncologist. At the end of that meeting there was some trust established. The fact the oncologist was part of a larger team out of Sioux Falls also helped to enhance that trust. Each case, including mine, was reviewed by a team of oncologists. No doctor is perfect, and it is reassuring to know multiple sets of eyes would be reviewing my case as time went on. Plus there is the fact my oncologist is also a hematologist. I am diagnosed with grade 2 follicular lymphoma, which is a type of blood cancer. Everything I’ve researched on the topic said it is important for me to have an oncologists that also happens to be a hematologist. If I had a different type of cancer it is quite likely I would have gone to Mayo for a second opinion.

I would say the last major reason I haven’t chosen to get a second opinion at this time is a wish to be treated locally. It is only about a twenty-minute drive to the hospital from where I live. Chemo wears the body out and it is nice to get home where I can lay in my own bed right away after my treatments. There is a healing power of being in ones own home. It is true I could have gotten a second opinion and still be treated locally. But I really didn’t want to put the stress of additional travel on my wife. She has had her life turned upside down just as badly as me by the cancer diagnosis. Adding trips to the middle of Minnesota would have increased the stress on her.

After getting through my treatments hopefully the cancer spread throughout my body will be pushed into remission. At some point during remission it is likely the cancer will come back in full strength. I quite possibly will get a second opinion when that occurs. Hopefully time won’t be such a large factor at that time. But even if I do get a second opinion I would like to keep my local oncologist and do my treatments locally. We will see what the future holds.

Pain, the symptom I forgot to talk about

4384151Yesterday I shared the side effects from my first three-week chemo cycle. Overall I can’t complain because I feel my experience has been pretty good. One symptom I really haven’t talked much about is pain. In fact looking back at all the posts I’ve done so far it appears as though I have had no pain at all. This is far from the truth. In this post I will briefly review the pain I am experiencing.

Today I went through my second round of chemo. It went well. I slept through most of it; I think the immediate sleep I get during chemo is due to the Benadryl the nurse shoots me up with. While speaking to the nurse about any side-effects I basically just told her everything I had blogged about yesterday. Then my wife chimed in about the pain I’ve been having. My reaction was “Oh yeah”. I’ve been living with this pain for long I don’t even think about it anymore.

I’ve had various back pains for a number of years now. These aches and pains come from a mix of being overweight, out of shape, a smoker, and doing too much on my own when renovating apartments and garages. About a year ago though the pain in my shoulders and some of my ribs remained constant. I went to the chiropractor for this a couple of times. But he was only able to make them feel better for a couple of days. And even then the chiro was really only able to alleviate the pain in my lower back. I now realize it is because a lymph node was actually causing my skeletal issues in that area. It is likely that after adjusting me that the lymph node just pushed me back out of alignment. Now that the lymph nodes have been pushed back by chemo the lower back pain is mostly gone (although yes, it is still there).

Whenever possible I have tried to hide this constant pain from other people. I’m not really sure why. My wife of course has known this whole time. When sleeping I apparently swear anytime I roll over and encounter a shot of pain in my back and shoulders. Looking back I haven’t really even talked to doctors about the pain much, because I’m usually going in for something unrelated to the pain. Or at least I was assuming it was unrelated to the pain. I’ve already seen from the PET scan results that I had lymph nodes pushing into my spine and that I have cancer in my bone marrow. The current pain I feel in my shoulders and ribs is likely a direct result of the cancer in those bones.

Back to today’s appointment. When speaking to one of the nurses I said my pain was only at about a seven or eight. She thought it weird I would say only. Well, it quite often spikes to a ten if I sit or lay down wrong. Anytime I am not at a ten I consider tolerable. Sometimes I will take ibuprofen if I’m going to be sitting somewhere uncomfortable for a long time. This summer I did that a lot going to the baseball games my boys were in. That really only seems to last a few hours. If it is long day I will rotate between ibuprofen and Tylenol. Going back and forth between the two helps some. But I try not to use either pain reliever too often. Sometimes I will also take ibuprofen when going to bed; but again I try not to do so very often. It has always been my theory that I should save pain relievers for when I really need them.

The best pain reliever has been from the hot tub, which I am no longer using due to being on chemo. Sometimes a hot pack or ice pack will work a little bit. But not for very long. I’ve also tried a large variety of lotions and oils. None of them seem to quite do the trick. It actually makes sense the oils didn’t work now that I think about it. The pain is likely coming from inside my bones, lotions and rubs won’t reach there.

Now back once again to speaking with the nurse. I did let her know where my current pain is at and how strong the pain is. She let me know today would be the first shot I would get to boost my bones. I was given a shot of XGEVA. In about a month I should have another shot. Hopefully XGEVA will protect my bones enough that they can start to heal. If nothing else the XGEVA may help me from breaking any more bones (post for another day).

Going forward I am definitely going to have to let nurses and doctors know about all pains. I don’t think I was really hiding the pain from them. I just didn’t see it as relevant at the time. And when dealing with other people I think I tried to hide the pain because I don’t like to bother other people with my problems.  Hopefully in the future the pain will be gone and I won’t have to worry about it anymore.

PS. I do have some “clouding” going on as I write this. Hopefully this post made sense.

Return to the fireworks show

21079636Those following my blog may remember the first time I saw the PET scan result showing cancer spread throughout my body. I thought it looked like the final display for a fireworks show. After that scan things moved very fast and I started chemo the very next week. In this post I will recall the experience of meeting with the oncologist a week after chemo and being able to see the PET scan images again.

My original meeting with the oncologist occurred on Wednesday, September 5 (which seems like a lifetime ago now). In the first half of that meeting I got to know the oncologist. The second half of the meeting was where I saw the fireworks going throughout my whole body. I don’t remember much from that first meeting with the oncologist. Luckily I had a followup appointment scheduled with the oncologists one week after receiving my first round of chemo; which was about two weeks after my first meeting with the oncologist. This followup meeting with the oncologist was on Wednesday, September 19, for those keeping track.

The followup meeting with the oncologist is much clearer in my mind. In this meeting my wife and I were able to ask any questions about my condition. Honestly I really didn’t have too many questions. I tend to research things on my own and the few questions I had were more to confirm what I had already researched. Probably the biggest question she answered was how many cycles of chemo treatment I would have. My wife and I remembered her saying different numbers. The oncologist said I was scheduled for eight treatments; but that I would receive a PET scan again after three treatments and the results of that scan may show it only necessary to have six cycles of chemo treatments.

After answering our questions I asked the oncologist if she would show us the PET scan results again and let us know what we were seeing. I thought maybe looking at it with a clear mind it would look less like a fireworks show. I was wrong. Every bone shown signs of cancer. There were so many lymph nodes from my neck to groin infected that I gave up on trying to count them. A few of those lymph nodes were pushing into vertebrae, which explains some of the back problems I’ve had over the last year. One of my lungs was mostly taken over with cancer; although the other one was clear so that was good. My spleen was mostly infected with cancer. The spleen being full of cancer is not a surprise since it is part of the lymphatic system.

The kidneys and bladder were lit up. But the oncologist said this was due to the tracer drug used during the PET scan. Even so she paused when looking at one of the kidneys and I noticed later in my chart that it was recommended a kidney have an ultrasound done in the future just in case. So that is one more scan I will likely have soon.

Two weeks prior the oncologist had told me there was some good news, but I couldn’t remember what that was. She now let me know that news again. The glow of the cancer in the bones was consistent with the glow from the cancer in my lymph nodes. This likely meant the cancer which had spread was still low-grade and most likely had not transformed into a more aggressive form of cancer. She also let me know I would have an injection coming up to boost my bone marrow. Somehow I had forgotten that important bit of information from the first meeting with her.

I will have another PET scan after my third chemo treatment. Hopefully by that time my PET scan results will no longer look as extreme as this scan. Since my lymph nodes have shrunk and I can once again breath, I am assuming the chemo is doing something. I know my type of cancer can’t be cured, but I sure hope to see it being pushed back.

Meeting the oncologist part 2: The Fireworks!

34711852Two days ago I blogged about the first half of the initial meeting with my oncologist. Most of the first half of that meeting was about getting to know the oncologist and deciding whether my wife and I trusted this doctor to care for my cancer. Now I will focus on the second half of the meeting. Everything changed at that point due to the results of my PET scan.

The events of this post happened on Wednesday, September 5 (about two weeks ago as I write this). Earlier that afternoon I had a PET scan done. After the PET scan I met with my the doctor who would become my oncologist. About half way through the meeting with the oncologist my PET scan results were released. That was when the fireworks started.

As my doctor opened the PET scan results she explained we would be looking at “slices” of my body starting from neck and going all the way down to my thighs. She went on to explain there would be a glowing in the places where cancer was present. Almost immediately we were able to see about a handful of large glowing areas in my neck. I already knew there were lymph nodes with cancer in my neck because one of them was causing my windpipe to be restricted. What I didn’t expect to see was glowing everywhere as the doctor went along my body. I can’t actually remember much of that first scan, just feeling of being overwhelmed at seeing so many glowing spots. I also vaguely remember seeing my spleen and one of my lungs were infected with cancer. In my mind this looked like the finale at a large fireworks display. It appeared fireworks were going off everywhere!

I know the doctor took me through the whole scan an explained everything as we went. But I really don’t remember any of that. All I remember is her saying is that since my bones were infected that I would not need a bone marrow biopsy. She also talked about my symptoms and the fact that I would need to start chemo immediately. My lymphoma had spread to a point where a watch and wait approach would not longer be appropriate. Vaguely I also recall her saying there was some good news in what she saw so we would only have to do a chemo approach. I can’t remember exactly what that was she said though (in two weeks I met her again and know what she said now, but I will cover that in a future post).

After speaking with the doctor, my wife and I both agreed that we would proceed with chemo as soon as possible. The doctor put in an order to have a port placed in my chest to make chemo easier. This was on a Wednesday and she hoped the surgeon would be able to get the port in on Friday. She also hoped for me to start chemo the next Monday, although that was dependent upon me getting a port in before that time and upon the insurance company pre-approving chemo by that time.

Looking back I don’t remember feeling any particular emotion. I think I was just overwhelmed with finding out the cancer had spread throughout what appeared to be my whole body. There was probably a lot more said by the doctor during that meeting which I am simply forgetting. Luckily I had a meeting two weeks later with the doctor as she patiently went over everything with me again (again, that will be in a later post). Now that I think about it, I don’t even remember going home that day or if I finally got to each lunch after fasting for the PET scan. All I could see is the “fireworks” going off throughout my body.

This is where I’ll leave off for today. Even though I don’t remember much about the second half the initial meeting with oncologist, I will definitely never forget the fireworks discovered during said meeting. In the next post I will continue my story as I meet the surgeon and get a port placed in my chest.

Recap of the posts documenting diagnosing my cancer

20011163Over the first week of this blog I have been documenting what I call the diagnostic phase of my cancer experience. In this post I will briefly recap those posts. I am doing the recap today because I am upgrading the software this blog runs on, and if something goes wrong at least I’m not losing any new content. Tomorrow I will be back to blogging as normal.

Besides my welcome post, the first post about my cancer experience had me asking whether I should have discovered my cancer sooner. This post documented my experience up until middle August of this year. In the end I came to the conclusion that I would not likely have discovered my cancer any sooner due to the lack of cancer-specific symptoms. Really until a lymph node stuck out of my neck it looked like I was having some sort of lung problem.

My next post began with getting the results of a CT scan. This was the first sign of something more serious than just lung problems. My continually deteriorating breathing problems appeared to be caused by a lymph node pushing against my windpipe. I also started to experience (or perhaps started to notice) new symptoms.

After the CT scan I had a biopsy done on the large lymph node sticking out of my neck. In that post I documented my experience getting the biopsy. Going into the biopsy I wish I had read something similar to my post so I knew what to expect.

When the biopsy results came back I had to get a PET scan. The PET scan was necessary due to my biopsy showing I had follicular lymphoma. In this post I not only documented the PET scan experience, but also some of the anxiety I had about the scan.

Yesterday I posted about meeting my oncologist for the first time. I only focused on the first half of that meeting, since the second half will be the subject of my next post. Most of what I remember from first meeting my oncologist was my wife and I determining whether we trusted the oncologist to properly treat my cancer. In the end we both decided the oncologist could be trusted and that doing my cancer treatments locally was a good idea.

At the beginning of this post I noted this was just small recap post. Over the next few days I will blog about seeing the PET scan results, the rush to chemo, getting a port inserted into my chest, and my first chemo experience. For those of you wondering, that all happened in just the last two weeks.