It is Thanksgiving today in the United States. Despite my diagnosis of non-Hodgkin’s lymphoma and going through chemotherapy treatments I feel there is a lot to be thankful for. Wait, make that because of what I am going through with cancer I know I have a lot to be thankful for. Going through cancer has made me appreciate just how good the world is and how great the people in it can be.
First I am thankful for my great neighbors. I have multiple neighbors who have offered to help around the house, have brought meals over, and a multitude of other things. I am truly thankful for these wonderful neighbors. Plus I think it has given my wife peace of mind knowing that as I sit at home recovering from chemo that any number of neighbors are a short call away in case she is unable to get a hold of me for some reason. Having good neighbors really reduces the stress on her.
Next up is friends and acquaintances. Sometimes in life it feels like I don’t really have a lot of friends. I’m sure a lot of other parents can relate to the fact that it is hard to have a lot of friendships when you are constantly traveling for kids sporting and school events. During times like this when I have cancer I found out how many people are willing to step forward and offer help. So many people have offered to help that I actually lost track. Even though I have not taken most of them up on their offer to help, I truly appreciate the fact they made the effort to help me and my family during this time.
Family has always been important to me, even if I never let them know. Both my family and my wife’s family have gone above and beyond to help us get through my cancer treatments. My wonderful mother-in-law has brought me meals while I do my chemo treatments and a brother-in-law has been there for me twice during chemo when my wife was unable to be there. My brothers and parents have helped just by being themselves and supporting me. I am truly blessed with family.
I am also thankful for the greatest wife in the world to help me get through my cancer treatments. Mindy is truly my soulmate and I don’t think I would be as mentally strong through this experience without her support. I only wish I could do something to reduce the stress on her. She really deserves a break.
Finally I am thankful for my boys. With my being on chemo the boys have had to put up with some major changes. They have handled these changes better than I believe many adults would. The boys have also stepped up to help me when they think I am overdoing it. My wife and I are truly blessed with great children.
To anyone reading this I would ask for you to think of those in your life you are thankful for. It is easy to get depressed or overwhelmed when going through cancer and/or chemotherapy. Instead of focusing on the negative aspects of cancer, I would urge everyone to stay positive and focus on people who are there to support you.
Parents want their children to be healthy and live longer than them. As a parent I worry about the health of my youngest child. After visiting with my parents this weekend, especially with my mom, it occurs to me this extends to children who are adults as well. In this post I will briefly blog about some ways my mom is impacted by my cancer diagnosis.
Before going on I will say I think I have the best parents. I think my mom and dad did the best to raise me and my brothers with what they had available. As my wife and I raise our children I tend to look back to what they did as guidance.
During each step of my cancer diagnosis my wife and I have made sure to keep my mom in the loop. She got calls when I went in for a biopsy, got the biopsy results, saw my PET scan results, had my port installed, went in for my first chemo treatment, and so much more. Each step of the way she had to wait on the phone and hope for the best. Being two hours away she simply can’t just drop by. The emotional stress of waiting each time must be almost unbearable at times.
Actually it really doesn’t even matter how far away my mom is. Since I’ve started chemo both my mom and dad have been battling their own health issues. Because of my immune system being so low they have not dared come visit me until this previous weekend. I can’t imagine the tremendous emotional strain this has been for my my mom. I’m sure many people are asking her how I have been responding to treatment, and she has been unable to say something like “yeah, I saw Ken the other day and he is looking good”. Hopefully we can all stay healthy enough that we are able to keep seeing each other more often.
But it is not just me that my mom is being kept away from. My youngest son Ashton has health issues, which appear to be getting worse. The middle son Lawson is definitely a grandma’s boy, and she has been unable to see him. And of course my mom sees my wife Mindy as one of her own children. My mom has been staying away to ensure I don’t get sick, but in doing so she has been unable to enjoy her grandchildren and comfort her daughter-in-law. This further adds to the emotional stress she is enduring.
I do believe this blog has been helping her cope, and she has said as much. In this blog my mom is able to better understand what I am going through. When friends and family ask about me, she is able to refer to my latest blog post. In some way this blog can help her to share my cancer experience, something I think as a parent would be invaluable.
I’m actually going to keep my word and make this a short post today. All I really wanted to do in this post is to briefly highlight that the parents of cancer patients are greatly impacted; especially if their children are adults and no longer living at home. Even adults have parents…
Its multimedia Friday again. Today I thought I would post a couple of videos to help people explain cancer to kids. I know my kids have had questions about cancer and I think my wife and I have done a fair job of explaining things to them. But I also think using videos such as the ones below can be helpful to supplement talks with kids.
I think this first video is great to explain to kids how some things might change when a family member has cancer.
This next video has some tips for parents about how to talk about cancer with children. The narrator of the video focuses on a couple of different age ranges.
Finally this last video is an animated video to possibly help younger children understand cancer in a visual way.
This weeks music video is from the Danish Band D-A-D. The lyrics from this song hit home for my cancer diagnosis. Especially the line “I got run over by truth one day”.
Yesterday I blogged about my third round of chemo. Overall I felt it went well, even with my blood pressure dropping quite a bit. My wife Mind however remembers yesterday differently. In this post I will briefly blog about how she though this round of chemo went.
First off Mindy agrees that my blood pressure was dropping. But she doesn’t see it as being no big deal. In fact her and one of the nurses were worried a bit because my blood pressure was dropping much quicker than it had the previous two rounds of chemo. My initial blood pressure was 130/68. It was 99/52 the last time it was checked. Telling her this is a known possible side-effect doesn’t make Mindy feel any better. It is just one of the things my poor wife has to worry about while I am on chemo.
Another thing other thing Mindy worried about yesterday was my dizziness. During this round dizziness seemed to be a larger side effect that it had been in the past. Even if I got up slowly to go the bathroom I would experience some dizziness. Mindy said it looked like I was about to fall over and I was very unsteady walking to and from the bathroom. I really think she wishes I would have called the nurse. But I couldn’t see calling a nurse for doing something so simple as walking to the bathroom. Mindy might have been right though…
Finally Mindy mentioned I was not sleeping as hard as I had during the previous two rounds of chemo. The Benadryl definitely knocked me out. But this time she said I would keep sitting forward in my chair and it would look like I was about to tip forward out of said chair. I don’t recall doing this. But I expect I was doing so because my back pain has been getting worse over the last few weeks. The shot I take to rebuild my bone marrow probably has something to do with my back pain getting worse. Sometimes the shots of pain I get are debilitating. But it doesn’t last long at high levels of pain and usually settles down to about a six on my pain scale. Mindy was definitely worried about this happening during chemo and me possibly falling forward onto my face.
I’ve said it before that chemo is hard on my body. It is also hard on my psyche at times. But I think in some ways Mindy is under much more mental stress due to my cancer than I am. It doesn’t help matters that we have a son with medical problem just as bad if not worse than my own. Hopefully I can find a way to reduce some of the stress on Mindy. She really has been a large reason I have coped so well with cancer so well.
This particular post won’t be about cancer. I’ve mentioned a few times on this site that my youngest son Ashton has medical issues. In the past I’ve used Facebook to keep family and friends updated as to his status. Going forward I am going to share the updates here. To get everyone up to date I’ll do a not so brief summary of what has happened with Ashton over the last year.
Ashton’s story began a little over a year ago when the wife and I were moving our family to a new house on the lake. All three boys were helping me clean out the basement in our old house. Somehow he fell into a plastic bin while carrying a picture. Ashton then began to cry and said something was wrong with his shoulder. I took a look at him and it appeared his left shoulder had kinda come out of its joint. I say ‘kinda’ because I’ve seen dislocated shoulders before, and this didn’t quite look like that. His arm was just hanging as if there was no shoulder. This is a condition we called “dropped” in our household now…
I gave my wife, Mindy, a call on the way to the Emergency Room and she met us there. The doctor at the ER seemed as confused as I was about the appearance of his shoulder. After an examination and x-ray the doctor said she couldn’t find a reason for the way Ashton’s shoulder was hanging. After conferring with another doctor on the phone, the ER doctor prescribed Ashton some muscle relaxant. It seems too long ago this, happened I can’t exactly recall the reason for the muscle relaxant. Ashton was in gymnastics during the summer, and we thought maybe he did something to his shoulder there.
For a couple of weeks things went fine. The muscle relaxer seemed to fix his shoulder issue. Then I received a call from Ashton’s school. He was in pain and his shoulder was “dropped” again. I still had some muscle relaxer and brought that to him. That seemed to fix the problem again, although it took a few hours. In the mean time we set up an appointment with an orthopedic doctor for Ashton. The referral for this doctor actually came from the ER doctor, although I had yet to set up the appointment because he seemed to be fixed. During the weekend prior to the orthopedic appointment his shoulder dropped more often. We realized by this time the muscle relaxer was doing nothing. Whether he had muscle relaxer or not, his shoulder would drop for a few hours and go back to normal as long as he didn’t overuse it.
When we finally had the orthopedic appointment Ashton’s should was dropping more often, at least once a day. He had a full exam. The orthopedic doctor put Ashton through a series of motions and tested his muscles and bones. The doctor noted Ashton had very strong muscles and there didn’t actually appear to be anything wrong with his bones. However (and isn’t there always a however), he said the problem is more widespread than just one shoulder dropping. With Ashton’s shirt off the doctor had us look at his back. To me his back looked normal. But the doctor noted his shoulder blades sticking out of his back. This is a condition called scapular winging. After the doctor pointed it out I was able to see just how bad it was. His shoulder blades stuck way out. Since Ashton had always been this way, we really never noticed the winging. The orthopedic doctor believed Ashton may be suffering from some sort of nerve or muscle disorder; both of which are out of his area of specialty. He said he would try to find a pediatric neurologist to refer Ashton to.
After a couple of weeks we finally got a call letting us know Ashton would have an appointment with a pediatric neurologist in Fargo. The only problem was the appointment wouldn’t be for about four months. Because of that the orthopedic specialist needed to fill out some sort of paperwork on their end and get Ashton’s case prioritized. After a couple weeks we had to meet the orthopedic doctor again. He informed us the pediatric neurologist he had originally referred us to was the wrong type of specialist and Ashton would not have an appointment in Fargo.
Once again the orthopedic specialist went about finding the right type of pediatric neurologist for Ashton. The doctor also noted this should be done by Ashton’s primary doctor. Since moving back to South Dakota some years ago our family has not had a primary physician. It never occurred to us this would be important. While the orthopedic doctor was working on getting a new referral I setup an appointment with a pediatrician I hoped would become the primary doctor for the two little boys. The doctor I met with ended up being a great doctor and as time went on became a great central point to make sure the medical records from various specialists all made it into Ashton’s file. He also helped us to understand what some specialists have said over the the last year. Oops. I’m getting off track… Back to Ashton’s story.
Finally in about November of 2017 Ashton had an appointment with a pediatric neurologist. We would have to bring Ashton to Gillette Children’s Hospital in St. Paul, MN. From November of 2017 to spring of 2018 we made many visits to St Paul for Ashton to be tested and meet with doctors. The neurologist believed Ashton may have some form of Muscular dystrophy or a neurological disorder. Ashton went through a series of genetic tests to rule out various neurological and muscular dystrophy related conditions. He also went through x-rays, CT scans, MRI’s and a host of other tests.
As time went on Ashton’s condition continued to deteriorate. By the end of the 2017 Ashton would miss a day of school every week or two. As we got into January and February of 2018 it became even worse. Ashton would be home from school one or two days a week. On these days Ashton would have extreme pain throughout his body. The worse of it would focus on his shoulders, knees, and sometimes his lower back. This would last for a day or two, and then suddenly he would be back to normal. It was during the middle of this time-period that Ashton first had to use a wheelchair, and it was for about a week. The poor kids knees hurt so bad he simply couldn’t walk. The doctors showed some exercises to help, and eventually he was walking again. Mentally Ashton was getting in rough condition at this time. He was tired of hurting for no apparent reason. And doctors appointments were weeks between each other to give time for various genetic tests to come back. The long periods of waiting for news from doctors really took its toll on Asthon.
When spring arrived we had our final appointment in St Paul. We actually met a different pediatric neurologist this time; our previous neurologist had unfortunately passed away earlier in the year. The current pediatric neurologist let us know all test results had come back and he said with full confidence that Ashton does not have muscular dystrophy. He believes Ashton is suffering from a type of hypermobility and that a referral to a closer hospital such as one in Sioux Falls would be possible. This was both great news and horrible news. On the one hand it was good to know Ashton doesn’t have MD or any of the other neurological conditions they tested for. But then we realized Ashton would be seemingly starting over with new doctors. The poor kid was not happy about starting over.
Hypermobility is the term used to describe the ability to move joints beyond the normal range of movement. Joint hypermobility is common in the general population. It may be present in just a few joints or it may be widespread. It is most common in childhood and adolescence, in females, and Asian and Afro-Caribbean races. It tends to lessen with age. In many people joint hypermobility is of no medical consequence and commonly does not give rise to symptoms. Hypermobility can even be considered an advantage, for example athletes, gymnasts, dancers and musicians might specifically be selected because of their extra range of movement.
For a small percentage of the population, instead of being advantageous, hypermobility may be associated with joint and ligament injuries, pain, fatigue and other symptoms. Hypermobility can also be a sign of a more serious underlying condition, which are often passed down through the generations. These conditions are known as Heritable Disorders of Connective Tissue (HDCT).
Ashton had always been flexible. That was part of why he enjoyed gymnastics so much. Actually during his diagnostic phase in St Paul his hypermobility had been noted. But at that time it was thought the hypermobility was a side-effect of muscular dystrophy.
At this point Ashton’s pediatrician was handling the referral. It took a while to find the right type of specialist for Ashton. Finally at the beginning of summer he had an appointment setup for September. We weren’t happy about waiting a few months. But we were told the Sanford Children’s Hospital in Sioux Falls was hiring a new genetic doctor specializing in cases such as Ashton. So we decided to wait it out and see how Ashton handled the summer.
The summer went pretty well for Ashton. He didn’t have to use the wheelchair at all. He still had one or two days each week he couldn’t move. But since we were home he would just hang out in his room. Ashton played midgets baseball. On the days he was having problems the coach would work with him and let him sit on the bench if he was too sore or his shoulder was dropped. There were a couple of game Ashton wasn’t happy with me or Mindy. When Ashton hurts really badly he doesn’t want to be around people at all, even if he can walk. One of the previous doctors said it was important to keep him social and make him go to school or sporting events, even if he couldn’t participate fully. So we did make him go to some games despite his protests. Overall though the summer went pretty well and we were almost thinking he was getting better. Then school began again.
Once school started again he was back to having one or two days a week where he had problems with his knees. Looking back, we don’t really think he was getting worse. It’s just that he didn’t have to move during the summer if he didn’t want to. School involves a lot of walking throughout the day. Instead of keeping him home every time, we were now sending him to school with a wheelchair on the really bad days. Since the beginning of this school year I would say he has had about five or six weeks where he went to school a day or two in a wheelchair.
Ashton’s appointment finally came in September. The only problem was it was set for the second day I would have my first round of chemo. At that time my breathing was so bad it was not possible for me to reschedule chemo; and we had waited so long for Ashton’s appointment we didn’t dare reschedule him. So Mindy took Ashton to Sioux Falls for his appointment while my brother-in-law sat through chemo with me. I really wish I could have gone to Ashton’s appointment. That is another thing cancer has taken from me…
The appointment with Ashton went well. Most of the time was spent by Mindy answering questions for the geneticist and going through his history. The doctors at the Sanford Children’s Castle believe they have a good idea of what type of hypermobility Ashton has. But just as the doctors at Gillette Children’s Hospital had noted, Ashton has some other symptoms that just don’t align with anything else. So he is also being tested for some other neurological condition which may or may not be related to hypermobility. His appointment with a neurologist at the Castle is actually coming up at the end of October.
Ashton also has an appointment with an occupational and physical therapist coming up. The doctors at the castle are covering multiple methods of diagnosing and helping Ashton with his pain. I really appreciate that.
I think two thousand words is enough for one post. In this post I shared a cliff note version of what has happened with Ashton over the last year (I could write a full book about everything that kid has gone through in such a short amount of time). Hopefully this post will help some family and friends of Ashton understand what he has been going through for the last year. I will post any major updates on this site to help keep people informed about his status.
Updated: Luckily Ashton does not appear to have whooping cough, it is likely a very bad cold. But we have to wait for the test to come back just in case.
Having sick kids is part of being a parent. An old co-worker of mine used to call his daughters school a petri dish for illnesses. I can’t really argue with that. Being on chemo complicates matter for me trying to care for my kids when they are sick. In this post I will talk briefly about dealing with the boys getting sick.
Today my youngest son, Ashton, is sick. Again… He was actually in the doctor’s office two weeks ago and tested positive for strep . He also likely had some sort of stomach virus (Lawson also had a stomach virus of some type at the same time.) Ashton went through the whole regimen of antibiotics and seemed to be doing better. That all changed this morning. His throat hurts really badly and he cannot stop coughing. The more he coughs, the worse his throat feels. He also says he feels hot, but does not have a fever. Finally he has a runny nose. To complicate things there has been a reported case of whooping-cough in his school. Today I’ll bring him into the doctor’s office to get diagnosed.
I am REALLY hoping Ashton does not test positive for anything like whooping-cough. With my immune system down and fighting the effects of chemo I could very easily catch whatever he has. This morning when he started coughing non-stop I put my blue mask on. But I wonder now if I was too late. I basically have him isolated in his room until we go to the doctor.
For the most part I have been doing OK dealing with the boys when they are sick. The wife and I generally keep them quarantined in one of their rooms. On some of the days they have been sick I have someone who comes in to help with the boys. Mostly to make sure they are eating and such. Luckily the boys are old enough they don’t need constant supervision. If Ashton does have whooping-cough I likely won’t bring anyone in. I am home all day and have already been exposed to his cough. I can’t see bringing someone else in to get sick. I will continue to wear my mask around him and use hand sanitizer anytime I have come near him or any surface he may have come in contact with. I can’t stop being a dad just because I have cancer and am going through chemo.
Hopefully the doctor will have good news for us today. But as I write this I hear Ashton coughing in the background and there seems to be a bit of a wheeze added to the end of his cough now. That poor kid, not only does he have to deal with his normal muscle problem, but now he had to deal with a cough that won’t end. I just hope I am able to help him without catching whatever he has myself.
This morning I posted a music playlist instead of a normal blog post. I did this mostly because I had to be in Groton today to watch a marching band competition thing my son was participating in. Below is the video of the Ipswich HS Marching Band. Lawson is playing the quad toms. He is three rows from the back of the formation, two in from the left (as they stand). He did great. At about 2:45 he flips his drum stick.
On a side-note it was great getting out in public even though I am technically at the point my immune system is at a low point. I was just smart and stayed away from people. For the indoor part of the event I had my mask on and sat in a corner of the bleachers. Being on chemo is not going to keep me from seeing my kids at events such as this.
My wife and I own a tax preparation and business services company. When we moved back to South Dakota from the Minneapolis area about seven years ago I left the IT field in order to help her grow that business. It has been tough at times, but I am quite proud of the business we have grown. Buying out her mothers tax preparation business helped, but really it was the payroll side of things which my wife started that grew the most. She has put a lot of time and energy into growing the business. It has grown to a point we have had to add a few full-time employees over the last couple of years. At each step of the way I have been there to encourage my wife and support her.
About a year ago this started to change. Our youngest son started having muscle problems and on some days is unable to walk. This has meant him staying home from school a day or two each week. To accommodate this I moved my office to our house during tax season. The main function I perform at the tax office is to review returns. Since all documents are scanned into the computer it is actually quite easy for me to do my work from home. Even though I worked from home I still had a physical office at our office building. I would ensure every week I spent a day or two at the office. This was mostly so I could be close to my wife and support her.
When summer came about my breathing problems became worse. Between my breathing problems and taking the little boys to baseball practice/games I can probably count on one hand how many times I actually made it into the office this summer. Now that I am on chemo I don’t go to the office at all, at least not during business hours. There are too many people who come in the office with the sniffles or who knows what germs. I just can’t risk getting sick. Plus I will be on chemo until February or so, well into tax season. I definitely can’t be in such a confined place with people coming and going.
At the same time the business continues to grow. We just added another full-time employee and we are running out of space for people at the office. That led to the decision to clean out my office. This was NOT a decision made by my wife. In fact she tried to talk me out of it. I didn’t realize it but my having an office there has been a form of emotional support for her. Even if I wasn’t there physically she felt as if I was there in spirit through my office. When I told her I was cleaning my office out she felt as if I was abandoning her. The logical side of my wife agreed it was something that needed to be done. But that doesn’t make it any easier.
On Sunday as I placed the last box in my pickup I made a comment to my wife that she had gotten rid of me now. I meant it as a lighthearted joke. Her face instantly dropped. My cancer diagnosis has been tough on her and this was just one more thing cancer was taking away. Logically she understood why I had to clean my office out. But my moving out of the office is just one more thing that my cancer diagnosis has taken away from us.
I’ll end this post here. Something so simple as cleaning out an office may not seem like an emotional topic. But it really is. A cancer diagnosis takes so many things away from patients and their families. This move away from the office was a physical reminder of that reality.
PS. Hopefully today’s post made sense. I have a lot of “brain fog”, aka chemo brain, going on today.
I love being a dad. That is one of the main reasons I call this blog Dad Against Cancer. I want to defeat this cancer in part so I can continue to spend time with my sons. In this post I will share a few ways my cancer experience has impacted my two youngest sons.
I should note I have three sons. My oldest son Dustin recently turned 21 and is off to college. I will handle the impact of my cancer on him in a future post.
My two younger sons are Lawson, age 13, and Ashton, age 11. Before going on I should note what kind of dad I have been up to this point. When the boys were young I really didn’t spend a lot of time with them. I was working in the IT field and worked long hours which included a lot of traveled. The worse was probably when we lived in the Minneapolis area and I was doing consulting. On a typical day I would leave for a job before the boys woke up and would arrive home late into the evening. I would then spend time working on homework to complete my degree and go to bed. Even when I got a job as a Network Engineer instead of consulting I would work massive hours and was always working from home in the evenings when I wasn’t focused on school. I wasn’t necessarily a bad dad, I was just focused on trying to make life better for the boys and definitely didn’t spend as much time with them as I would have liked.
About seven years ago we moved back to South Dakota. It was then I left the IT field and focused on growing my wife’s business. I also slowed down my lifestyle to spend more time with the boys. I volunteered to be a coach in sports such as soccer. During the summer I would take the boys to all of their summer rec sports. It was also during this time-period I started to blog about politics. The boys would travel all over with me to cover political events. My boys can not only tell you who many of our elected politicians are in South Dakota, but where they met them. As the years went on I spent more and more time with them.
Fast forward to a year ago. Ashton started to have a problem where his muscles would not work properly and on some days could not get out of bed. It was at that time I started to work from home completely. During the last year I have spent a lot of time driving him to St Paul to get tested for various muscular and neurological disorders. At the same time Lawson would get jealous of the time I spent with Ashton, so I would make sure I found ways to make it to his basketball games or encourage his love of playing the drums and guitar. I was really starting to be the dad I always wanted to be.
When this summer came about my health really started to falter. My breathing problems were getting quite bad, but I tried to hide it from everyone. I especially tried to hide it from the boys, although I know they knew something was wrong. This previous summer I was able to travel all over with the boys as they traveled for baseball. Ashton played Midgets baseball and Lawson fell at the age where he could play both Midgets baseball and Teeners baseball. It was a great summer! I went with them to every baseball practice and game that I could. I think I only missed two practices and one game for each kid.
The summer was not all roses however. Traveling to all of these practices and games took its toll on me. As my breathing continued to degrade I would spend more time at home sitting at the computer. It wasn’t that I wanted to sit at the computer. I simply didn’t have the energy to do anything else. Plus the pain I was feeling only felt better if I was sitting in a forward-leaning position. My youngest boys knew something was wrong. I can think of multiple times during the month of August, after baseball was done, when the boys would ask if I was OK and if I had to go to the hospital. I always played it off as me just being old and tired and would make a joke. As time went on they weren’t laughing at as many jokes. They knew something was wrong, even if I wouldn’t admit it to them.
On August 27 the doctor called to let me know I had cancer. My wife and I sat the boys down and let them know I had cancer and tried to explain it to them somewhat. A website I found had some tips for giving the news to kids. I’m not sure they understood yet what we were telling them.
September 11 is when I began my first round of chemo. Prior to chemo my wife and I discussed some changes with the boys that would have to happen around the house. The whole house had to be cleaned, everyone would have to take new steps to keep germs away from me, nobody could use my bathroom in the few days following chemo, and the boys would have to stay away from me if they were sick. There were other changes as well, but I think this gives the idea that the boys were majorly impacted by my going on chemo. They stepped up well. Both boys helped to clean and sanitize the house. When the boys get in the house from school or come upstairs from the lower level they immediately sanitize their hands. Just this week both boys had a stomach virus and Ashton had strep. Both boys stayed away from for days to ensure I wouldn’t get sick. I’ve been so proud of how they have handled themselves.
But it should also be noted they have told both my wife and myself some things which trouble them. Part of cancer or chemo causes something called “chemo brain”. My thoughts will sometime fog up and I find myself forgetting a lot of things. This is quite frustrating and I will sometimes just snap at the wife or boys for no reason. I have also had the same conversations with the wife and boys multiple times without remembering the previous conversations. This has left the boys quite confused and they have let my wife know about their confusion. Due to this brain fog the boys have become reluctant to ask me anything. They can’t know for sure if I will remember what is said or they will wonder if I will snap for no reason. It really is putting a strain on the dad-son relationship. I have also noticed they will sometimes just look at me with a worried look.
The boys know how to google things. And I know at least one of them has googled the heck out of cancer. Of course most of the things that come up on a google search about cancer are bad. I am quite sure the boys have read a lot of bad things about cancer prognosis. I won’t forget one of my sons asking if I was going to die after he had gotten done reading something on the internet. He wasn’t crying, but you could tell he wanted to. I just hugged him and said I would do everything to fight the cancer so I could continue to watch him and his brothers grow. He said he would do anything he could to help keep me around. I didn’t cry at the time. But now as I write this and remember the moment I have tears running down my face… Perhaps this is a good place to stop blogging for today.
My boys have definitly been impacted by my cancer diagnosis. As I continue to fight against my cancer I hope to find ways to overcome some of the negative impacts. Maybe this post will help give others insight into a few ways the relationship between a parent and kids can be impacted by a cancer diagnosis. No matter what I plan to keep fighting against my cancer and be there for my boys as long as I can!